I started this post a while ago, but it got
too long. Instead of doing one long
post, I have decided to do a few post focusing on different aspects. What SID/SPD is, the good and bad points, how
Adam is affected by it, what we are doing about it and a few other comments.
I am by no means an expert on the subject;
all I know is what I’ve learnt through my own experiences as someone who has
lived with SID/SPD and as a mother to a child who has SID/SPD.
What is SID/SPD?
Firstly, we call it SID here, I think you
call it SPD there. Same thing. There is so much info available on the Net
about it, and so I am not going to bore you with the technical details. Here is a great site
with loads of information.
Wikipedia defines SID as follows:
Sensory Integration Dysfunction (SID, also
called sensory processing disorder) is a neurological disorder causing
difficulties with processing information from the five classic senses (vision,
auditory, touch, olfaction, and taste), the sense of movement (vestibular
system), and/or the positional sense (proprioception). For those with SID,
sensory information is sensed normally, but perceived abnormally.
The way I like to think of it as
follows. All of us live in an
environment that sends messages to our senses all the time. We hear noises, we feel the wind on our skin,
we feel the sand under our feet, we smell things, we taste things. Because there are so many messages being sent
us all the time, we manage to ‘tune out’ most of the unnecessary ones. We know our socks are on our feet, but we
don’t keep feeling the sensation of having socks on all day. The messages sent from the skin on our feet
has been processed in our brain and put on mute.
Do yourself a favour. One day when you are in a mall, stop what you
are doing to listen. Listen really hard
and allow all the noises to start registering in your brain. Stop your brain from tuning out the noises,
just listen. The people talking, the air
conditioners, the cell phones ringing, the babies crying, the wheels of the
shopping carts, the banging, the calling. Noisy huh? Imagine hearing ALL those
noises all the time. You would go mad in
there. So you tune the noises out. You press mute on most of the receptors in
your brain and you just keep a few on call in case you need them (your own cell
phone ringing, your child calling you, ‘dangerous’ noises – i.e. ones that
aren’t normal).
Now imagine you weren’t able to press mute
on those receptors. Imagine you heard
all those noises all the time. Imagine
you couldn’t push mute on the receptors that kept sending you messages like
THERE IS A TAG IN YOUR SHIRT THERE IS A TAG IN YOUR SHIRT THERE IS A TAG IN
YOUR SHIRT THEREISATAGINYOURSHIRT. Eventually you want to rip your shirt off in the mall and tear that tag
out.
We all get messages from our environment
all the time. We have to, to stay alive. Most of us learn to modulate our receptors to those messages so only the
important ones come through. The new ones, the unusual ones, the dangerous
ones. If we didn’t, we would be in a
constant ‘fight or flight’ stage of hyper awareness, which is not only super
stressful, it is exhausting.
Some of us are more sensitive to certain
messages than others are. Some people
have a keener sense of smell. Some
people are able to pick up subtle differences in taste. Some people have low tolerance for itchy or
scratchy clothes.
Think of a spectrum, on the one side there
are those who have very few receptors. Someone could fart right under their nose and they wouldn’t notice. Then on the other side, there are those who
are not only able to smell sour milk from 7 miles away, but the smell of that
sour milk is so strong that it makes them nauseous to the point where they are
unable to concentrate on anything else. Most people operate someone where in the middle of the spectrum. Some a little to the left, some a little to
the right. People with SID operate towards
either end of the extremes, known as hypo sensitive or hyper sensitive. I am over simplifying of course, but you get the
picture.
As Wikipedia explains, there are the five
senses we are used to: touch, vision,
smell, auditory and taste. And then
there are two more senses that we don’t often speak about – vestibular (sense
of movement) and proprioception (sense of positioning). Some sensory kids have
sensory issues with all 7, some with one, some with a few. However even those kids with just one or two
sensory issues will often be a little more sensitive to the rest. As I said above, some kids are hypo sensitive
(they need strong / many sensations to process the message), some kids are
hyper sensitive (even a slight sensation shouts the message).
Adam’s sensory issues are most with the
vestibular and proprioception senses, although he is sensitive to the other
senses as well. Mine are touch and
auditory.
As I have said many times before, I don’t
see Adam's SID/SPD* as a disability. I don’t even see it any more as a ‘label’ than
being ‘arty’, or ‘bookish’ or ‘tall’. It
just is. Sure, it makes it harder to do
some things (it certainly makes it challenging to parent a child like that!),
but perhaps because I have it too (and look how well I turned out!!!), I just
don’t see it as a negative. In fact, I see it as special. One could even say it is a gift.
Sensory kids often see more, taste more,
smell more, feel more than average kids do. They experience and feel things that other kids might miss out on. They are inventors, discoverers, scientists,
artists and great humanitarians. They world
needs sensory kids to discover cures and create great things for the
generations to come.
So, there is chapter 1 in the SID/SPD Info
Sheet. Tomorrow I will share with you
what it is like living with a child who has SID/SPD.
*Edited to acknowledge the one commenter who remarked that severe SID/SPD can be severely disabling. Those who have it badly have a really tough time. What I meant to say is that being diagnosed as SID/SPD does not necessarily translate to a disability. Adam's SID is certainly not a disability, but then again he has a very mild form thereof.